TORONTO (November 9, 2020)– Today the cystic fibrosis story is significantly changing, with a long-awaited transformational therapy now in sight for Canadians living with the disease. Cystic Fibrosis Canada has received information that a decision has been made by the manufacturer to bring new CF medicines to Canada.
Read MoreNews
All media inquiries can be directed to mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233.
An open letter from Canadian cystic fibrosis clinicians calling upon the government to take action for Trikafta now.
Read MoreTORONTO, September 4, 2020— Cystic Fibrosis Canada is proud to announce the expansion of the Cystic Fibrosis Canada Accelerating Clinical Trials Network (CF CanACT) from six sites across Canada, to ten.
Read MoreTORONTO, August 24, 2020 - Cystic Fibrosis Canada is imploring the government to take action given new research published today that demonstrates that access to the cystic fibrosis (CF) drug Trikafta in 2021 would result in profound health improvements for people living with cystic fibrosis who take the drug. By 2030 Trikafta could reduce the number of people living with severe lung disease by 60% and reduce the number of deaths by 15%.
Read MoreTORONTO (July 28, 2020) – Cystic Fibrosis Canada is pleased to announce its year-long virtual partnership with Nova Scotia-based fitness centre, Evolve Fitness. Members of the cystic fibrosis (CF) community who sign up for a $30(CAD) monthly membership for online fitness classes will see $10 (CAD) of their membership fees donated to Cystic Fibrosis Canada every month, for a year.
Read MoreTORONTO (June 12, 2020) – Today, Canadians with cystic fibrosis are one step closer to gaining access to a suite of life-changing treatments for cystic fibrosis as the pan-Canadian Pharmaceutical Alliance (pCPA) and the drugs’ manufacturer, Vertex Pharmaceuticals, have agreed to begin negotiations.
Read MoreA message from the CEO
Racist violence targeted at members of the Black community reminds us that silence in the face of injustice is never an option. Cystic Fibrosis Canada stands with the Black community. We at Cystic Fibrosis Canada will not remain silent when it comes to racism. Black Lives Matter.
Read MoreTORONTO (April 30, 2020) – Led by the Cystic Fibrosis Trust’s CF Registry, the collaborative study includes data for 40 people with CF who have tested positive for COVID-19 in 8 different countries.
Read MoreTORONTO (April 27, 2020) – Riverdale actor Jordan Connor, the recent winner of RuPaul’s Secret Celebrity Drag Race, has chosen Cystic Fibrosis Canada as his charity of choice for a donation of $30,000 in prize money.
Read MoreThis week has been designated as “National Volunteer Week”, when the tremendous contributions of Canada’s volunteers are recognized from coast-to-coast.
Read More