CF News
Let’s Ensure the Right to Try for Everyone with CF
July 18, 2024https://cysticfibrosis.ca/en-ca/news/lets-ensure-the-right-to-try-for-everyone-with-cf
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Our commitment at Cystic Fibrosis Canada to ensure everyone with cystic fibrosis (CF) can live W/O Limits is more vital than ever! Today, we are calling on you to help us. Please join us in supporting the basic right for everyone with CF to try life-changing treatments.
Immediate Action Required
While Health Canada’s decision to expand Trikafta access is a step forward, it does not give immediate access to those it has been approved for. And there are others, who were not approved, who may respond to Trikafta, who are getting sicker and sicker as they wait for access. We must continue to advocate to ensure that everyone has the right to try this life-transforming treatment now.
You Can Take Action Today:
Add your name to our pre-written letter now to push for policy changes that give access to Trikafta for all those who may benefit. Dr. Paul Eckford, Chief Scientific Officer for Cystic Fibrosis Canada, says: “We call on CDA and INESSS to move swiftly to recommend funding. However, provincial and territorial governments should not wait for these decisions to act, nor should private drug plans. They have the power to fund Trikafta now for these additional genetic profiles and must do so today to prevent further delays in treatment for those who need it."
Thank you for your unwavering support. Together, we have the power to transform our healthcare system into one that truly serves every person with CF and leaves no one behind.
