Cystic Fibrosis Resources Hub
We’ve compiled resources that support learning about living with cystic fibrosis. Search this Resources Hub by clicking on one of the categories or topics, or entering text in the search field.
Explore more: visit our News Hub, Blog Hub or Publications page. And stay tuned for our Mental Health Resource Hub coming early 2025.
Got non-urgent health questions? Connect with our Helpline at 1-800-378-2233 during ET business hours or email helpline@cysticfibrosis.ca.
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Canadian CFTR modulator therapy guidelines
Cystic Fibrosis affects 4,445 Canadians. These guidelines helps clinics manage CFTR modulator therapy, improving survival and quality of life for patients.
Food Intake Guide
Learn all the tips to keep a food intake guide to ensure optimal health when living with cystic fibrosis
Cystic fibrosis and summer care tips
Get ready for the summer sun by protecting yourself with a list of summer care tips for people living with cystic fibrosis
Your child and CF
Learn essential details about CF including the causes, symptoms, treatment options, and the critical role of a healthcare team.
When your parent has CF
Explore this activity book designed for parents with cystic fibrosis and their children, offering fun, engaging activities suitable for all ages.
Cleaning nebulizer and airway clearance equipment at home
Discover essential steps for cleaning and disinfecting nebulizers and airway clearance equipment at home to prevent infections.
Teen sexuality and CF
A comprehensive guide on teen sexuality with CF, addressing puberty timing, relationship advice, contraception, fertility, and personal care tips for a healthy and informed adolescence.
Travel tips for CF
Essential travel tips for those with cystic fibrosis, covering health management, medication storage, and documentation for a safe and enjoyable trip.
Parenting with CF guide
A resource to help you succeed while being a parent and living with cystic fibrosis.
School toolkit: a guide for parents and teachers
A resource for parents and teachers to support students with CF. Learn about CF’s impact on health and learning, classroom adjustments, infection control, and ways to create a safe, inclusive environment.
Transitioning from paediatric to adult CF care
A guide for a smooth transition from pediatric to adult care for individuals with CF including helpful checklists, preparation tips for appointments, and a tracking tool.
Cystic Fibrosis and Pregnancy
Join Dr. Cynthia Brown, Ronalee Robert, Emily Brennan, and Melissa Snowden in this webinar on cystic fibrosis and pregnancy. For personalized advice, we recommend consulting your CF clinic or medical professionals.
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Canadian CFTR modulator therapy guidelines
Cystic Fibrosis affects 4,445 Canadians. These guidelines helps clinics manage CFTR modulator therapy, improving survival and quality of life for patients.
Food Intake Guide
Learn all the tips to keep a food intake guide to ensure optimal health when living with cystic fibrosis
Cystic fibrosis and summer care tips
Get ready for the summer sun by protecting yourself with a list of summer care tips for people living with cystic fibrosis
Your child and CF
Learn essential details about CF including the causes, symptoms, treatment options, and the critical role of a healthcare team.
When your parent has CF
Explore this activity book designed for parents with cystic fibrosis and their children, offering fun, engaging activities suitable for all ages.
Cleaning nebulizer and airway clearance equipment at home
Discover essential steps for cleaning and disinfecting nebulizers and airway clearance equipment at home to prevent infections.
Teen sexuality and CF
A comprehensive guide on teen sexuality with CF, addressing puberty timing, relationship advice, contraception, fertility, and personal care tips for a healthy and informed adolescence.
Travel tips for CF
Essential travel tips for those with cystic fibrosis, covering health management, medication storage, and documentation for a safe and enjoyable trip.
Parenting with CF guide
A resource to help you succeed while being a parent and living with cystic fibrosis.
School toolkit: a guide for parents and teachers
A resource for parents and teachers to support students with CF. Learn about CF’s impact on health and learning, classroom adjustments, infection control, and ways to create a safe, inclusive environment.
Transitioning from paediatric to adult CF care
A guide for a smooth transition from pediatric to adult care for individuals with CF including helpful checklists, preparation tips for appointments, and a tracking tool.
Cystic Fibrosis and Pregnancy
Join Dr. Cynthia Brown, Ronalee Robert, Emily Brennan, and Melissa Snowden in this webinar on cystic fibrosis and pregnancy. For personalized advice, we recommend consulting your CF clinic or medical professionals.
Sexuality and fertility for adults
A resource on sexuality and fertility for adults with CF. Learn about maintaining a healthy sex life, how CF impacts fertility, and genetic considerations for family planning, including carrier testing and counseling options.
Infection prevention and control guidelines: for clinicians
Discover the Infection Prevention and Control Guidelines for Cystic Fibrosis, designed to help healthcare professionals reduce cross-infection risks in CF clinics
Financial resources available to Canadians with cystic fibrosis
For Canadians living with cystic fibrosis looking for financial support, here is a list of resources available
Cystic fibrosis sweat and genetic testing
Find information on cystic fibrosis (CF) sweat and genetic testing costs, eligibility, and locations across Canada.
Enzyme Guidelines for adults with cystic fibrosis
A quick guide on the role of pancreatic enzymes and nutrition for adults with CF. Learn about enzyme types, proper dosing, and tips for effective digestion and nutrient absorption.
Exercise for CF patients
Explore how exercise can support lung function, muscle strength, and overall health in individuals with cystic fibrosis. Find age-specific tips, recommended activities, and guidance for integrating exercise with regular physiotherapy.
Lung transplantation and cystic fibrosis
Lung transplants for cystic fibrosis can extend life and improve quality. Learn about the process, benefits, risks, and post-transplant care essentials.
Education and CF
Discover key information for supporting students with cystic fibrosis and guidance for creating a CF-inclusive learning environment.
Nutrition and CFTR modulators
Discover essential nutrition guidance for individuals with cystic fibrosis (CF) using highly effective CFTR modulators like Trikafta. This resource provides valuable insights to support overall health and well-being.
Enzyme guidelines for children with cystic fibrosis
A quick guide on the role of pancreatic enzymes and nutrition for infants and children with CF. Learn about enzyme types, proper dosing, and tips for effective digestion and nutrient absorption.
Is a G-Tube Right for You? Benefits, Process, and Care Explained
Learn how a G-tube can help people with cystic fibrosis meet nutritional goals, from benefits to insertion, feeding, and follow-up care.
Healthy Diet, Healthy Fats
People with cystic fibrosis need more fat due to higher energy needs from inflammation, infection, and malabsorption. Learn how to boost your diet with healthy fats!
Dehydration and infants with cystic fibrosis
Learn about the signs and symptoms of dehydration in infants with cystic fibrosis and tips on how parents and caregivers can prevent it.
Healthy Nutrition for Cystic Fibrosis
Good nutrition is crucial for individuals with CF because of the link between healthy body weights and good lung function. Find out more.
All about cystic fibrosis-related diabetes
Learn what cystic fibrosis-related diabetes is and how to manage it for optimal health
Bone health and cystic fibrosis
Learn about bone density, the difference between Osteopenia and Osteoporosis and how to protect your bone health if you live with cystic fibrosis
Distal Intestinal Obstruction Syndrome in adults
Learn what Distal Intestinal Obstruction Syndrome is in adults with cystic fibrosis, its causes and symptoms, and how to treat it if you think you have DIOS
Distal Intestinal Obstruction Syndrome In Children
Learn what Distal Intestinal Obstruction Syndrome is in children with cystic fibrosis, its causes and symptoms, and how to treat it if you think your child has DIOS
Depression, anxiety and cystic fibrosis
Learn about anxiety and depression in people with cystic fibrosis, ways to manage your health and how to find help when you need it.
Vitamins and Cystic Fibrosis
People with CF struggle to absorb nutrients, especially fat-soluble vitamins A, D, E, & K. Learn why taking your vitamins is crucial for staying healthy!
Preventing dehydration in adults with cystic fibrosis
Learn about the signs and symptoms of dehydration in adults with cystic fibrosis and tips on how to prevent it.
Pre-Pregnancy Nutrition Guidelines for Women with Cystic Fibrosis
Are you preparing your body with the right nutrients to support a healthy pregnancy and baby? Maintaining a healthy weight, taking essential vitamins, and supplementing folic acid and iron are vital steps.
What to pack for a hospital stay
Learn tips and tricks to make it easier to prepare for a hospital stay for cystic fibrosis
Recommendations for follow up of pregnancies and births on modulators
This is a resource for clinicians regarding recommendations for follow-up of pregnant patients using CFTR modulators.
CF Canada Community Forum: Unchartered Territories
Watch CF Canada's Community Forum: 'Unchartered Territories,' featuring expert speakers on the future of cystic fibrosis care and updates from CF Canada's leadership.
CF Community Q&A with CEO & President Kelly Grover
On April 5, 2024, Cystic Fibrosis Canada's CEO, Kelly Grover and her senior leadership team hosted an online forum to introduce the future vision of volunteer and fundraising experiences and to answer questions from community members.
Cystic Fibrosis Related Diabetes: A First Canadian Clinical Practice Guideline
This is a resource for clinicians treating cystic fibrosis related diabetes.
Aging with CF (webinar)
Cystic Fibrosis Canada hosts a webinar with Dr. Anne Stephenson on her study, Getting Older & Wiser: the complexities of ageing with CF, exploring changing demographics and emerging health conditions using data from 2002 to 2022.
Guidelines for diagnosis and treatment of pulmonary exacerbations in patients with cystic fibrosis
This guideline was produced to help diagnose and treat pulmonary exacerbations in the average patient with cystic fibrosis (CF), and is intended for NON-CF SPECIALISTS such as emergency department physicians, pediatricians and general practitioners.
Cystic Fibrosis Airway Clearance Therapy Recommendations in an Era of Modulators
Read the full consensus statement on airway clearance therapy for individuals with cystic fibrosis (CF) and their caregivers/support people/families.
Mental Health and Cystic Fibrosis
Discover our webinar on Mental Health and Cystic Fibrosis, featuring expert insights from a social worker, a person with CF, and a caregiver. Watch the discussion on managing mental health in the CF community.
Navigating Issues With Private Insurance (webinar)
Learn how the OmbudService for Life and Health Insurance, a free and independent dispute resolution service for Canadian life and health insurance consumers, can assist with private insurance access issues.
Impact Award Lecture with Dr. Christine Bear
Learn how Cystic Fibrosis Canada funds research through its grants program, investing over $200 million since 1960 with input from researchers and CF community reviewers.
Trikafta's Impact
Trikafta is already transforming many lives in Canada. Let's keep going #furthertogether until everyone can access the medicines they need to live longer and healthier lives. Take action this CF awareness month and Walk, Write, Meet or Donate (or do all four) to help make sure no one is left behind .
The Canadian Guide to Nutrition and Cystic Fibrosis
This handbook guides and supports optimal nutrition for people of all ages with cystic fibrosis, providing tools to promote healthy eating and a healthy lifestyle.
Antibiotic Dosing Guideline for Cystic Fibrosis
This antibiotic dosing guideline for cystic fibrosis patients emphasizes individual factors like weight, organ function, drug interactions, and allergies.
Canadian Consensus Statement on Aerosolized Antibiotic Use in Cystic Fibrosis
In 1999, the Canadian Cystic Fibrosis Foundation issued its first consensus on aerosolized antibiotics. This update reviews current data and offers recommendations for CF clinics.
Fertility Treatment Options Part 2
Discover Cystic Fibrosis Canada’s 2019-2020 webinar series that explores various aspects of fertility and family planning. This webinar focusses on Fertility Treatment Options (IUI/IVF) with Dr. Schram, Megan Parker, and Bob Caskanette.
Fertility Issues in Men and Women with CF
Cystic Fibrosis Canada’s ACFAC presents an 8-episode webinar series on fertility and family planning for individuals with CF, covering topics like fertility issues, treatment options, pregnancy, and adoption. Watch the first webinar with Dr. Tullis on fertility issues in men and women with CF.
Cystic Fibrosis and Female Fertility
This webinar covers fertility and pregnancy in cystic fibrosis, discussing challenges, outcomes, and care strategies for women with CF, highlighting improved survival rates and family planning options.
Cystic fibrosis infection prevention control policy FAQ
Learn why it's important for people with cystic fibrosis to take measures to prevent infection and how much distance to keep between people with CF to protect their health
Infection prevention and control policy for CF Canada events
Learn about the infection and control policy for CF Canada hosted or sponsored events and meetings
Medical chart for students with CF
A comprehensive template for sharing important information about your child with cystic fibrosis for their school year.
Fertility Treatment Options Part 1
Watch the first webinar on Fertility Issues in Men and Women with CF with Dr. Tullis.