Cystic Fibrosis Canada News Hub
Stay updated with the latest cystic fibrosis news and trending topics from Canada and around the world. In this News Hub, you'll find information on Cystic Fibrosis Canada's programs and initiatives, and news relating to cystic fibrosis research, policies, treatment and community activities.
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Cystic Fibrosis Canada's 2023-2024 Impact Report
The team at Cystic Fibrosis Canada is pleased to share our 2023-24 Impact Report. Entitled Forward Together, it summarizes the accomplishments of the past year as we work with the Canadian cystic fibrosis community to make longer, healthier and fuller lives a reality for all Canadians with cystic fibrosis.
Our progress in 2023-24 reflects that we are at a crossroads in cystic fibrosis. Responding to the realities of CF today and preparing for the needs of tomorrow means there is much work still to be done. But there is also much to celebrate.
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2024: Celebrating the incredible achievements made possible by you
Thanks to your support in 2024, we raised over $3 million, advanced research, and secured better access to treatments for Canadians with CF. Here's to even more progress in 2025!
Growing evidence of Trikafta’s benefit
CIHI’s report reveals Trikafta’s impact on reducing acute care needs for Canadians with CF, while highlighting access inequities and ongoing challenges in care.
Trikafta funding recommendation for rare cystic fibrosis mutations brings hope to some, but falls short for others, says Cystic Fibrosis Canada
Canada’s Drug Agency recommends funding Trikafta for 152 rare CF mutations, aiding 240 Canadians. Cystic Fibrosis Canada calls for immediate access and inclusion for all who could benefit.
Keeping up with the changing state of cystic fibrosis
Cystic Fibrosis Canada receives Canadian Drug Agency funding to continue strengthening the Canadian Cystic Fibrosis Registry.
Let’s Ensure the Right to Try for Everyone with CF
Today, we are calling on you to help us. Please join us in supporting the basic right for everyone with CF to try life-changing treatments.
Cystic Fibrosis Canada Celebrates Approval of Trikafta for Rare Mutations
Cystic Fibrosis Canada is encouraged by a recent decision by Health Canada to approve the life-changing cystic fibrosis (CF) drug Trikafta for some living with rare mutations that lead to CF.
Research Competition Tackles Rare CFTR Mutations
It is with great enthusiasm that Génome Québec and Cystic Fibrosis Canada announce the launch of the Tackle Rare, Orphan CFTR Mutations Competition.
Frank Leier 100th Birthday
Frank Leier, also known as "Mr. Saskatchewan," recently turned 100! Celebrated for his lifelong contributions to the CF community, Frank has been a pivotal figure in CF advocacy and fundraising.
2024 Research Competition
Cystic Fibrosis Canada has opened its annual grant competition for 2024.
Trikafta funding for 2 to 5-year-olds
Trikafta is now available to Canadians aged two years and older, with at least one F508del gene mutation, through publicly funded drug plans in all but two jurisdictions, the Yukon and Northwest Territories.
CF Canada Community Forum
CF Canada successfully hosted the virtual CF Canada Community Forum: "Unchartered Territories" on April 26, 2024.
Genome Quebec Research Partnership
It is with great pleasure that Génome Québec and Cystic Fibrosis Canada join forces to create a new funding program to support omics research on cystic fibrosis.
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