James’s story: Candid thoughts on mental health resources

James Fournier is the proud father of Leroy, a spirited 6-year-old who loves numbers, letters and elevators. James says that when Leroy was diagnosed with cystic fibrosis (CF), their family’s lives changed dramatically. 

“When we first heard the words “cystic fibrosis,” my wife and I were thrown into a world of fear, uncertainty and countless medical appointments,” said James. He says he found the weight of the disease wasn’t just in the daily treatments or the precautions required, but in the moments of joy they had to put on hold to keep Leroy safe.  

James is candid about the impact that managing his son’s disease has had on his own mental health. “As a father, you want to be the rock for your family, but there were days when I felt like I was crumbling inside.” James understood how important it was to access mental health resources but also felt the financial burden of seeking that help, so had to cut back on using it. He feels strongly that mental health is a vital part of the whole cystic fibrosis healthcare package. “Access to mental health support shouldn’t be a luxury,” says James. “Honestly, it’s been a lifeline for me.” 

All of us at Cystic Fibrosis Canada are grateful to James and his family for sharing their story. (If you’re interested in sharing yours, here’s how.) Increased awareness of the importance of mental health support for those affected by cystic fibrosis helps increase the likelihood that people will consider accessing it for themselves or their family.   

“Knowing you’re not alone in your experience can mean everything,” says James. He feels grateful to the work we do with 40 CF healthcare clinics across Canada to ensure families like his can access vital healthcare resources. “Healthcare without limits,” says James, “Means recognizing that CF impacts our whole health, touching every part of life.” 

James offered to share his story to generate awareness and funds in support of our campaign to raise $30K by Rare Disease Day on February 28, 2025.  

Donate now to help James and families like his thrive with the best possible healthcare 

Learn more about Cystic Fibrosis Canada’s Healthcare Program