Support for the Early Years

You've received Cystic Fibrosis and Your Baby: A Supportive Guide for the First Years.

Whether you're looking for support, practical tools, worksheets or additional resources referenced throughout the guide, you'll find them here. You don't need to explore everything today. Come back whenever questions arise, or you need support along the way.

Explore the Digital Guide

A father throw's his two year old son in the air, the son is laughing

New to cystic fibrosis?

Not sure where to start? These resources can help you better understand your baby's diagnosis, what to expect in the early days, and where to find support. Scroll down to find downloadable worksheets and helpful links.

Downloadable Worksheets

As routines become part of everyday life, many families find it helpful to have practical tools to stay organized. Download the worksheets and checklists below to help manage appointments, medications and day-to-day planning.

Please note: these worksheets were designed to be printed and completed by hand. If you require an accessible version of any worksheet, please contact us at info@cysticfibrosis.ca, and we will be happy to provide one.

Help Shape Future Care Packages

If your family received a newly diagnosed care package through your CF clinic, we'd be grateful for your feedback.

By sharing your experience, you'll help us understand what was most helpful and identify ways to improve support for future families.

Share your feedback

Looking for more information?

Throughout the guide, you'll find references to helpful resources, tools and sources of support. We've gathered them here in one place so they're easy to find whenever you need them.

I have questions about my baby's diagnosis.

If you're still processing your baby's diagnosis, these resources can help you better understand the testing process and what happens next.

I'm looking for information about CF and my newborn.

I'm looking for information about my child's care.

As your child grows, you may have questions about infection prevention, clinic visits and hospital stays.

What is CF research focused on in Canada?

Research continues to improve treatments, care and quality of life for people living with cystic fibrosis. Learn more about ongoing work and how information collected through the Canadian CF Registry helps advance care and research.

Are there financial supports available for families?

There may be programs, benefits and resources that can help offset some of the costs associated with cystic fibrosis.

Financial Resources Available to Canadians & Families with CF
Registered Disability Savings Plan (RDSP)
Canada Disability Savings Grant & Bond
Medical Expense Information

Where can I find stories and experiences from other families?

Community Stories & Blog
Follow CF Canada on Social Media:
https://www.facebook.com/CysticFibrosisCanada
https://www.instagram.com/cfcanada
https://www.linkedin.com/company/749327/admin/dashboard/

Have questions?

The Cystic Fibrosis Canada Helpline answers your non-urgent health questions about cystic fibrosis and connects you with vital community and government resources. Contact us by email at helpline@cysticfibrosis.ca or by phone at 1-800-378-2233 to speak with a member of our staff during business hours, Eastern Time.

Contact the Helpline

Support for the Early Years

New to cystic fibrosis?

Your baby's diagnosis

Resources for every stage

Connect with others

Downloadable Worksheets

Help Shape Future Care Packages

Looking for more information?

Have questions?

New to cystic fibrosis?

Your baby's diagnosis

Resources for every stage

Connect with others

Downloadable Worksheets

Looking for more information?