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CF research knowledge exchange

There is no question that knowledge is power. And sharing it is even more powerful. We are proud to be leaders in the cystic fibrosis research community and excited to share and learn with our cystic fibrosis research colleagues in Canada and around the world.

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Watch: Cystic Fibrosis Canada President & CEO Kelly Grover shares takeaways from the 24 NACFC

Canadian Cystic Fibrosis Conference

Join us September 17 –19, 2025 for Cystic Fibrosis Canada’s first Canadian Cystic Fibrosis Conference, hosted in Calgary, Alberta. 

The conference will spotlight the development of Canadian consensus and national standards for CF care, explore early implementation strategies, and highlight hot topics in healthcare and research and knowledge gaps that future research and clinical trials can address.

Read: Stories on cystic fibrosis researchers and their research

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Image of Dr. Fabrice Jean-Pierre

Dr. Fabrice Jean-Pierre: Uncovering the Invisible Battles in CF Lungs 

Dr. Fabrice Jean-Pierre’s research digs into a problem many people with cystic fibrosis (CF) know intimately: chronic lung infections. Even as treatments like Trikafta improve lung function and overall quality of life for many, bacteria like Pseudomonas aeruginosa (PA) continue to linger, evolve, and resist treatment. Over time, PA can cause significant inflammation and tissue damage in the lungs, contributing to a decline in lung health. 

Image of Dr. Brad Quon
Research

Dr. Brad Quon: Investigating Inflammation in the Trikafta Era 

Dr. Brad Quon, a Clinician-Scientist at the University of British Columbia, is asking bold, urgent questions amid the game-changing impact of CFTR modulators like Trikafta:  Is inflammation still a problem? Who still needs treatment beyond Trikafta? How can we personalize care to meet every patient’s need? 

Research

Alyftrek: Your Questions Answered 

Alyftrek: Your Questions Answered  You might be wondering: What is Alyftrek? If so, you’re in the right place. We’ve answered some of the most common questions about Alyftrek to help you understand the latest on the newest cystic fibrosis (CF) treatment option. 

Check out our Elevate program

Canadians living with cystic fibrosis and their families and caregivers are helping to determine the research we fund. Elevate members are making a meaningful impact on CF research in Canada through their role as Community Reviewers for Cystic Fibrosis Canada and their participation and consultation in third-party research projects across the country. Thanks for this knowledge exchange!

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