Living (well) with cystic fibrosis

The daily burden of cystic fibrosis is a reality for all people living with CF. The latest health information, caring support, advocacy and research advancements can bring welcome relief, change and empowerment. Cystic Fibrosis Canada is here to help.

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young woman prepares a meal with her mother

Optimal health: the goal for Canadians living with CF

Tapping into resources, care and unwavering support to address the various impacts (including emotional, social, physical and financial) of this challenging disease can put you or your loved one in the best position to stay as healthy as possible. Use this section of our site to access the CF information and resources you need to reach that important goal.

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Navigating a new diagnosis of CF

A new cystic fibrosis diagnosis can be overwhelming and all-consuming. For many Canadians, their diagnosis didn’t come until later in childhood. Today, a diagnosis of cystic fibrosis for most people happens through newborn screening programs in all provinces. Resources are available to help you navigate through to the information, care and support you, and the person you’re caring for, need most.

Read about New CF Diagnosis

Looking for CF support and resources?

Navigating CF resources to access the best care is a critical role and is made easier with reliable information and friendly support. We are here to help.

I am an adult with CF

Cystic fibrosis was once considered a pediatric (child’s) disease but today, 65% of Canadians with CF are adults. Adults with CF are expected to live longer and healthier lives than ever before and, with that, comes new health issues to manage. CF Canada can help with resources and support.

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I am a parent or caregiver of someone with CF

There's much to know about caring for people with cystic fibrosis, and accessing needed resources can help inspire confidence.

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I am a young adult or teen with CF

During this time, you can become more independent and a natural progression is that you will start taking more responsibility for your treatments.

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I'm looking for a CF clinic

Cystic fibrosis (CF) clinics provide specialized inter-disciplinary care for individuals with cystic fibrosis. In Canada, there are 40 CF clinics, located in most major cities, each within a hospital setting, and many with a university affiliation.

Find a CF clinic

Access cystic fibrosis resources

We’ve compiled a wide range of helpful resources for people at all ages and stages in the cystic fibrosis journey. We invite you to explore the sample resources below, our searchable Resources page and to keep in touch with us for personalized support.

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Health & Wellness

Food Intake Guide

Learn all the tips to keep a food intake guide to ensure optimal health when living with cystic fibrosis

Health & Wellness

Cleaning nebulizer and airway clearance equipment at home

Discover essential steps for cleaning and disinfecting nebulizers and airway clearance equipment at home to prevent infections.

Health & Wellness

Teen sexuality and CF

A comprehensive guide on teen sexuality with CF, addressing puberty timing, relationship advice, contraception, fertility, and personal care tips for a healthy and informed adolescence.

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Here to help - the CF Helpline

Cystic Fibrosis Canada has a Helpline to answer your non-urgent questions and help connect you with the community and government resources available to you. We’re here and ready to chat during business hours Eastern Time at 1-800-378-2233 or you can email us at helpline@cysticfibrosis.ca.

Community stories

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Bethany, her husband Jonathan, and their young son, Zachary, pose in a forest for a family photo.

Stories

I walk for my son and my sister

Bethany’s son Zachary was diagnosed with CF as a newborn. With support from family and IWK Health, they remain hopeful. Join The Walk to Make Cystic Fibrosis History.

Apr 2, 2025

Stories

A Lasting Legacy: Transforming the Future for Generations to Come

Cystic Fibrosis Canada is deeply grateful for the generosity of Erik and Birthe Andersen, whose dedication to the cystic fibrosis (CF) community spanned decades.

Apr 1, 2025

James Fournier holds his wee babe wearing a tartan cap.

Stories

James’s story: Candid thoughts on mental health resources

James Fournier shares his story as a father of a young boy with cystic fibrosis and the need for mental health resources for families affected by the disease

Jan 31, 2025

Young Édouard and his parents pose in front of the Christmas tree

Stories

A Step Toward A Brighter Future

As the mother of a child with cystic fibrosis (CF), I've learned that hope is a powerful force. It's what drives us forward, pushing us to go further for everyone living with this relentless disease. Today, I want to share our story — a story of struggle, resilience, and a plea for your support in making a life without CF a reality, not just a distant dream.

Apr 30, 2024

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