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“I just want to live a full life:” Teresa Weger on Rare Mutations, Resilience, and the Push for Progress
Living with a rare cystic fibrosis mutation and no access to Trikafta, Teresa Weger opens up about the realities of CF, her advocacy work, and why continued research is essential.
Spotlight on CF Research Webinar: recap and Q&A
On June 18th, Cystic Fibrosis Canada hosted the second annual virtual Community Forum, themed, “Spotlight on CF Research”. In case you missed the webinar, we’re recapping what was discussed and sharing the Q&As from our stellar lineup of Canadian cystic fibrosis researchers.
Dr. Dao Nguyen: Fighting Pseudomonas Aeruginosa in the Trikafta Era
Why is Pseudomonas Aeruginosa still showing up in people with CF, even on Trikafta? Dr. Dao Nguyen’s lab is on the case, exploring why this stubborn bacterium sticks around.
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Health Canada approves CF drug Alyftrek for Canadians with Cystic Fibrosis
On July 22, 2025, Health Canada approved the new cystic fibrosis drug Alyftrek for people in Canada with cystic fibrosis aged six and older with the most common CF mutation, F508del, and for those with at least one responsive mutation in the CFTR gene.
Cystic Fibrosis Canada 2024-25 Impact Report | 65 Years of Progress
Discover Cystic Fibrosis Canada’s 2024-25 Impact Report. See how 65 years of research, advocacy, and community support are reshaping the future for Canadians living with cystic fibrosis.
Cystic Fibrosis Canada opens 2025 research grant competition
Canadian researchers in CF, including links to diabetes/cancer, can apply for 2026 funding. New: Seed Trial Planning Grants & a Publication Prize.
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“I just want to live a full life:” Teresa Weger on Rare Mutations, Resilience, and the Push for Progress
Living with a rare cystic fibrosis mutation and no access to Trikafta, Teresa Weger opens up about the realities of CF, her advocacy work, and why continued research is essential.
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Peer Connect: Navigating moving out of home for the first time
For adults (18+) living with CF: Looking to connect with others who understand life impacted by cystic fibrosis? This session will focus on navigating moving out of home for the first time and is open to those living with CF.
Aug 27, 2025
Shine Season is back — and it’s your chance to make an impact.
This summer, join CARSTAR locations across Canada in raising critical funds for cystic fibrosis through Shine Season, the company’s annual fundraising campaign running from June to September.
Jun 1, 2025
Peer Connect: Connecting dads and father figures
Looking to connect with others who understand life impacted by cystic fibrosis? This session will focus on connecting dads and father figures and is open to parents or guardians of someone living with the disease.
Aug 28, 2025